Hi everyone! My name is Chrissy and I was diagnosed with secondary Lymphedema in 2009.
Eight years. It took eight years for me to grieve the diagnosis. It took eight years to work through the five stages of grief several times. It took eight long years to accept “my new lymphie life,” and to start living, again, lymphie free. Finally, it took eight years for me to find my voice, and to rediscover the girl I left behind when I was diagnosed.
There is no secret to living “lymphie free.” And I, in no way, have it figured out completely yet. I have my good days and I have my bad days, which would break me completely if I allowed them to. But, I think the term “lymphie free,” allows me to see the world in a different way. It is a world where I do not allow Lymphedema to define me, and where I do not allow Lymphedema to control my life any longer. It does not mean that I do not have symptoms, nor does it mean that I “pretend” I no longer have Lymphedema. It is a mental state that I try to focus on to believe that I can live a full and empowering life despite my Lymphedema diagnosis.
I love to read and I love to write. I have always found writing to be cathartic. I hope this blog can serve as a safe haven and resource for my fellow lymphies, and as a means to raise awareness for this disease. Who knows, maybe no one will read it. But, if one person finds this blog helpful, or learns a little more about Lymphedema, then I have done my job as a patient advocate.
I hope you will follow this blog and share your own stories and advice for others as well.
Live your life “lymphie free” and have no regrets.